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Lessly Field's avatar

For breast cancer, I was supposed to have (I can’t quite recall, but I think this is the number) 26 sessions (same dose over more time). My radiation oncologist made a mistake and didn’t update my plan from 16. I ended up with 16 sessions. 5 months later (one lymph node removed during surgery 2 months prior to the start of radiation), I developed lymphedema. I can’t help but wonder if I extending the time that I took to “eat the pizza” would have been gentler on my tissues and helped me to avoid lymphedema. Thoughts?

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Lyn Leaver's avatar

It is a pity that they did not have more knowledge of radiation back in the 60's and 70's. As a result of so called safe radiation treatment back in the 70's in my late teens the results from my 40's on was life changing. Back then they used radiation treatment for non cancerous conditions and I had a course of radiation treatment for acne on my chin believing that it was perfectly safe. In my early 40's my thyroid gave up and my oral lichen planus started to become very painful making it difficult to eat. Then when I was 59 I was diagnosed with jaw cancer as a result of the lichen planus. Over time I have had a mandibulectomy and 2 maxillectomies all from a supposedly harmless treatment in my youth. If I knew then what they now know there was no way I would have had the radiation treatment.

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